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Showing posts from November, 2009

RCN Special Interest Group on CFS/ME

I have just resigned from the Royal College of Nursing Special Interest Group on "CFS/ME". I found it to be shockingly entrenched in the psychosocial model, promoting, for example, study grants in "CBT" , publishing exemplar case studies on CGT and GET and refusing to even change the name of the CFS/ME group to "ME/CFS".

It's been the most depressing experience.

Anyway we fight back ! XMRV changes everything !!

Updated Clinical Guidelines

Support for Severely Affected ME Sufferers
Information for General Practitioners and Clinicians
Greg Crowhurst (Updated Nov 2 2009)

Introduction
There is still much confusion and a lack of accurate knowledge about severe ME/CFS in the medical profession, leaving many patients “dismissed and abandoned without support.” Hooper et al (2005) .

It is a matter of record that “the most severely affected are excluded from study in the UK.” (Hooper, Marshall & Williams 2006) Recent research by the 25% Group uncovers a shocking picture of severely ill ME/CFS sufferers being labelled as psychiatric patients, being treated with contempt by GP’s, doctors and nurses, being locked in secure units and shut in AIDS wards, being refused food and being made to participate in inappropriate graded exercise and behavioural therapy, designed to convince them there is nothing wrong with them. (Crowhurst 2005)

What is ME/CFS?

Variants of the term "M.E." were first used following a series of repeatin…